Success with expressing colostrum before birth
Hi! I’m determined to BF despite the odds or will try to pump if I can. I’m 32 weeks and baby has a unilateral cleft lip (unsure if complete or incomplete) with possible palate. With my first, milk...
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Upstate New York providers or hospitals
Hi. I am just trying to do some research before May gets here and I have no idea what I’m doing. Is anyone familiar with any hospitals or doctors available in upper NYS (Albany or weschester, or even...
View ArticleGum notch and teeth
Hey all, My daughter Ellie was born with a unilateral cleft lip and gum notch. She's about to be 4 and her front 2 teeth (which is where her notch is located) are pushing together. So, one front tooth...
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Confirmed cleft lip. Devastated and unsure..
Devastated as I was a week and a half ago. So it’s confirmed he does have a cleft lip. She gave me the option to get the amino genetic test done to rule out other genetic disorders that can sometimes...
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Insurance or self pay? Surgery cost..
I am curious where you live and if cleft lip/palate surgery was covered by your insurance or you had to pay out of pocket? How much did you have to pay for each surgery?
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Did you announce cleft lip on social media?
We already announced we are pregnant with a little boy. I’m not sure if it’s appropriate to post he will be born with a cleft lip or not. Or just post pictures when he’s born and act like it’s totally...
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Provigil and cleft lip/cleft palate
Did you know that taking Provigil during pregnancy can cause cleft lip and/or cleft palate in your baby? Provigil and Nuvigil are most dangerous during the first and second trimesters, when the fetus’...
View ArticleUp oming Lip Repair
Hi everyone, My baby girl will be getting her first surgery on Thursday for her lip repair. I'm really nervous and excited for it to get done. I wanted to reach out and ask for any advice or tips as...
View ArticleCleft palate and VSD
Hi, I originally posted in the babies with congenital heart defects, but I thought I would also post in this group to see if I could find more people with a similar experience. My son was born earlier...
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Submucous cleft palate
My boy is six weeks old tomorrow, and we just noticed this a few days ago. It doesn’t seem to affect his nursing at all, thankfully, but I did notice that he “clicks” loudly as he nurses and does gag...
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